Aidan’s a young teen with a sparkling spirit and a beautiful smile. But as a newborn, there were many unknowns for his parents who faced significant medical complications with him almost immediately. They knew challenges were ahead as they thought about his future.
The medical reality before them was in stark contrast to their love for a wonderful child with a full head of hair and big brown eyes, whom they adored instantly.
At only four-hours old, Aidan had his first of many choking episodes due to severe GERD. At 9 months old, he was not able to sit up on his own, would not make eye contact, was not babbling, and had seemingly no interest in the world or people around him. He was finally diagnosed with a rare genetic disorder known as Dup15q Syndrome.
Over the next few years, Aidan received many additional diagnoses. With so many overwhelming obstacles before him, he’s still made progress worth celebrating.
Great things his parents want you to know about Aidan:
Things we think Aidan, who is non-verbal, would like to say to you are:
Things we want you to know about Dup15q Syndrome:
To others whose lives have been touched by Dup15q Syndrome:
Whatever you are going through, know that understanding the cause is probably in the future. We know that your world is being shaken right now, but trust that you will find solid ground to stand on and know that you will become a better person because of the journey. Love and patience will see you through. Robert & Adrienne – Aidan’s parents