Champions

Meet our Courageous Faces Champions.

You will become inspired by their courage as each shares their journey. Join us in celebration of these amazing people as we continue to enhance the quality of their lives.

Maddie

Condition: Caudal Regression Syndrome/Sacral Agenesis (SA/CRS)

Mark

Condition: Lamellar Ichthyosis

Sophie

Condition: Charcot Marie Tooth Disease

Aidan

Condition: DUPq15 Syndrome

Glory

Condition: Dwarfism

Hannah

Condition: TENS

Maria

Condition: Ichthyosis

Cassidy

Condition: Dwarfism

Dominic

Condition: Pfeiffer Syndrome

Johnny

Condition: Burns

Juss

Condition: Albinism

Reggie

Condition: NeuroFibromatosis

Zahra

Condition: Freedman Sheldon Syndrome

Thomas

Condition: Choroideremia

Sammi

Condition: Choroid Plexus Papilloma

In Loving Memory of:

KJ

Condition: Stevens-Johnson Syndrome

Jen B.

Condition: Multiple Sclerosis

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